Fast forward to 2017. Now, I have plans. Lots of plans. Sometimes, I think, too many. I've been a zookeeper for almost eight years (yep, I started in the Children's Zoo shortly after the above trip to CO), I've been working as an author for five years, I've moved three times, saved some money, spent some money, traveled as much as possible, ran a few marathons, met John, dated forever, got married and attended over 40 weddings together. I did not spend one moment of that time thinking of DKMS.
That was until early 2017, when, after a school visit I got a voicemail from a lady named Marissa. "I just wanted to inform you that you're a match with a cancer patient," she said. What? I thought. Sure, I remembered that night at Red Rocks (despite the wine), but still, was this legit?
Like any self-respecting girl of the 21st century, the first thing I did was google it. I read a bit about DKMS online and decided that it sounded like the real deal. So, I returned the call.
Marissa explained to me the basic process and answered any questions and concerns I had (i.e. Could I keep running/ever run again? Or have kids? How much would this cost? etc.). She also made sure that I understood that even though I matched I may not be able to donate, and it likely would be PBSC not bone marrow. Often a patient's condition can change and they might become too sick to receive a transplant, or medical plans or insurance changes. Also, I might not physically pass the requirements needed to donate and on top of that it was all about schedules and timing.
About a year after the Red Rocks trip, I'd taken another trip to visit Alex who, in the summer of 2010, was now living in Colorado. Together, with our friends, we went white water rafting. When the guide was giving us our instructions for the journey he constantly said things like "IF you fall in the water this is what you do (but that is NOT going to happen)...and IF our boat wraps this is what you do (but that is NOT going to happen)..." and on and on. Well, everything he told us was likely not going to happen on that trip DID, indeed, happen. Our boat capsized, we all fell in the water and the raft wrapped around a huge boulder for several hours.
So, when Marissa gave me all of her disclaimers about what probably wouldn't happen, I didn't really buy them for a minute. I knew/had a feeling that if I gave my consent I was in this thing for real. At this point in my life I had a lot to lose. Lots of plans, remember? Plus a very difficult, inflexible work schedule and a physical job. But I also feel like I am, in general, a pretty selfish person who tends to just go to work and focus on my own projects. I don't volunteer much or really help out in my community, and here it was, an opportunity to do just that presenting itself right on my doorstep. Or on my voicemail, rather. I told Marissa I was in. I'd like to move forward with the donation process.
The first step was to visit my local LabCorp (one I was quite familiar with from my good, 'ol Accutane days. Ah, memories.) to get my blood drawn to be sure I was a close enough match. I did this, it went well, and about a week later, after a confirmation call from Marissa, I was able to move forward with the process.
I was told that the cancer patient I matched with was a 45 year old woman with Leukemia. John lost his Aunt Barb two years ago to cancer, when she was close to that age, so though I did not know the woman's name or anything about her, I sort of kept Barb in mind during this time. She was my inspiration and motivation to see it through and to try to do my best to help this person who, of course, had a family and friends who loved her just as Barb did.
The only thing I was really told about the patient was her age and sex. Other than that it's all anonymous. It is important to note that no money was exchanged during this process, and that I did not spend a cent on anything related to the donation--travel costs, food during travel, medical tests and expenses, John's travel costs for the donation etc.
The next step was to fly to Washington D.C. to have a physical at Georgetown University Hospital. Georgetown is apparently a hub for bone marrow/PBSC donation, and one in which I could supposedly be scheduled rather quickly. This was February, and I was still planning on running the Boston Marathon in April. Obviously, running a marathon (even Boston) is no excuse to not try and help somebody, after all, it's not how I bring home the bacon. That being said though, I did hope to get the donation done early enough to be able to return to my training, if possible. I was able to schedule my physical for Thursday/Friday on my weekend so that I did not have to miss work for this part of the process.
Shortly before my trip to D.C. Marissa called me again and informed me that the patient's doctors were requesting bone marrow. Remember the raft story? Yep, it's true, not only was I a close enough match and the schedule was open, but they also wanted bone marrow, all of the things Marissa had said likely would not happen.
My initial reaction was fear, but for a stupid reason. I'm not afraid of pain or the process of recovery (sort of a lesson you learn running marathons, I guess?). My fears were a lot sillier than that. Anyone who has known me for any significant length of time knows that I have a deep and irrational fear of throwing up. I'm not proud of it, but it's true. The last time I was under general anesthesia was when I had my tonsils/adenoids out when I was 9, and I threw up a lot after that, so I was kind of scared.
Of course, cancer patients often have to deal with that and much more, so it was very silly and immature of me to be afraid for that reason. And, I told myself, being afraid is no excuse not to help someone. Death is always a risk with anesthesia, Marissa told me. But I knew that that risk was minimal. I told her, yes, I was willing to donate the bone marrow. I'd deal with my fears later.
I read a lot about bone marrow donation online in the next few weeks, and I talked to my friend Eliz who had donated to her sister. I found out that it wasn't quite as painful as public opinion makes it out to be. I'm sure it's uncomfortable, but Eliz said that the worst part was recovering from the anesthesia, and lots of online blogs said that it just felt sore, as if you'd been punched in the lower back or something, which I knew I could deal with. After talking to Eliz and reading blogs online, I became much less afraid and felt fully committed to the process.
Just before my trip to D.C. for my pre-donation physical, however, I got another call from Marissa. She informed me that since I'd had an avulsion fracture of my iliac crest (aka broke my right hip bone) when I was in high school, I was not going to be allowed to donate bone marrow.
I was surprised to react to this news with first anger, and then sadness. First of all, I told her, did they not see that on my medical records when I first filled out the numerous forms required to donate??? Second of all, I was a perfectly fit, healthy, 30 year old lady, and I was willing to donate! Why did they want to waste such perfectly good bone marrow?? Then, when I realized that I had no dog in this fight, I felt sad. Like I said, when I was first asked to donate marrow I felt nervous, but then I completely got on board and had mentally adjusted to the idea. I felt sad that I couldn't give the patient what she needed. I really felt let down and disappointed. I never claimed to be normal, by any standards, but I'm just telling it like it is. This is how I felt about it.
They still wanted me to donate PBSC, so shortly after our conversation I flew to D.C. This was very exciting for me. I don't travel a lot for work or anything, so anytime I get to fly someplace new it makes me pretty happy--even if the majority of the trip was going to be spent inside of a hospital. When I got into town I was able to get dinner with my good friends from college, Chloie and Matt (who I call Calbs), which was an added bonus, and they drove me around to show me some of the sites of the city. The physical took place the entire next day. I had to give blood samples, urine samples etc. etc. and have a full physical. Of course, this too was an added bonus. Free physical and blood work! Can't complain about that.
I was declared healthy and ready to donate PBSC. According to Google, "the same blood forming cells that are found in bone marrow are also found in the circulating (peripheral) blood." The blood forming cells are collected during donation and given to the patient in need. The Georgetown doctor was very nice, and I explained to her that I felt perfectly healthy and if she wanted the bone marrow instead of PBSC, than she should just take it. She told me, no, they could not take bone marrow from someone who had fractured their hip, but that PBSC would be more than adequate for my match, and that in the last 10 years donation has trended that way anyway. Improving technology and medical advances have made PBSC donation as valuable as bone marrow for many patients. Finally satisfied with this answer, I left the hospital, spent a whirlwind few hours at the Smithsonian Natural History Museum, and flew home with my donation date scheduled for the end of the month.